Craniofacial Resources, including Cleft Lip and Palate

The Craniofacial Clinic at Children's Hospital in Seattle just went online with a great resource for craniofacial conditions like ... (following links and text from their site)

• Cleft Lip and Palate
  The most common condition that we treat.
• Velopharanynegeal Insufficiency (VPI)
  Children with cleft palate are at risk for VPI, a disorder that affects speech.
• Pierre Robin Sequence
  A birth defect that involves an abnormally small lower jaw and breathing problems.
• Stickler Syndrome
  A genetic disorder of connective tissue that results in problems with vision, hearing, facial and skeletal development.
• Velocardiofacial Syndrome
  A complex craniofacial condition often linked with cleft palate.
• Van der Woude Syndrome
  An inherited form of cleft lip and/or palate.
• Craniosynostosis
  A birth defect caused by premature fusion of skull bones; the second most common condition we treat.
• Crouzon Syndrome
  A rare genetic form of craniosynostosis.
• Apert Syndrome
  A rare genetic form of craniosynostosis.
• Saethre-Chotzen Syndrome
  A rare genetic form of craniosynostosis.
• Positional Plagiocephaly
  A change in head shape caused by external pressure on the skull.
• Hemifacial (Craniofacial) Microsomia
  A condition with underdevelopment of the ears and jaws.
• Treacher Collins Syndrome
  A rare, inherited, congenital craniofacial condition that affects the bones, jaws, skin and muscles of the face.
• Other Rare Conditions
  We treat other conditions not listed here.

The Craniofacial Clinic site also offers a glossary of craniofacial terms.

Children's has another nice resource dedicated to cleft lip and palate:

• Birth Defects ToolKit - Cleft Lip and Palate

One especially detailed document is their "Critical Elements of Care", which goes into a lot of detail about what to expect over the years in terms of clinic visits, surgeries, and other interventions:

• Critical Elements of Care: Cleft Lip and Palate